xx. You should get better care. Carbimazole is associated with an increased risk of congenital malformations, especially when administered in the first trimester of pregnancy and at high doses. I think that my next step will be to find out if I have Graves. Your doctor will advise you on which is the most suitable for you. You should always speak with your doctor before you follow anything that you read on this website. Dr. Ashish Verma. If you get any side effects, talk to your doctor or pharmacist. Do regular work out and diet control hold the key . Thank you for this, Misky - it's encouraging on many levels. LIFE AFTER CARBIMAZOLE WHAT TO EXPECT COMING OFF IT?, Do symptoms return when coming off carbimazole, Coming off 125mcg levothyroxine conpletley. I hope you get it sorted soon. xxx. The FT4 level is persistently raised six months after completion of radioactive iodine treatment, as this may indicate suboptimal treatment. Answered by : Dr. Prabhakar C Koregol ( Cardiologist) What are the withdrawal symptoms of phenobarbital? Enter your password. Your situation is terribly confusing as RAI is supposed to be last resort when the drug fails, not some kind of extra. Take care, Download Here Free HealthCareMagic App to Ask a Doctor, All the information, content and live chat provided on the site is intended to be for informational purposes only, and not a substitute for professional or medical advice. Is this an immediate return of hyper or is it common to have a resurgence of these symptoms prior to a resettling? His symptoms improved, rashes disappeared and pain also improved. Regards, See an endocrinologist. I do hope that your own circumstances will improve and send you a gentle hug right now. Do not stop taking citalopram after 1 or 2 weeks just because you feel it is not helping your symptoms. I am trying to come off carbimazole after almost 2 years to see if I'm in remission but every time I come off or even cut down, I get symptoms of agitation, faster heart rate, odd sensations in my head. I'd like to try but very gradually. I don't know whether I have Graves' disease or hyperthyroidism as was never tested for antibodies. But you need dose adjustment according to Free T3 and T4 levels as well. First of all, how is it possible you don't know if you have Graves?!?!? Well you need to continue it. The most common adverse effects associated with carbimazole administration are gastrointestinal signs (Bucknell, 2000). You have my complete sympathy- this is an AWFUL way to feel. "i am taking 10mg of carbimazole daily for my hyperthyroism condition. Conclusion: Often there is a diagnostic dilemma whether the urticaria is secondary to thyrotoxicosis or a drug reaction to carbimazole. Patients under carbimazole treatment can be referred for radioiodine therapy after withdrawal of carbimazole for only 3 days. Patient should be asked to report symptoms and signs suggestive of infection, especially sore throat. I know he stayed away from caffeine, etc., but I wonder if you could try all the things that flatten or slow down metabolism? Without changing their medication regime, they can become profoundly hypothyroid. I am hopeful I will be ok having made some changes to my lifestyle - I quit smoking 5 years ago and haven't touched a cigarette in 20 months, I eat a healthier, more organic diet, and I'm not as stressed generally. I'm currently taking 5mg carb a day and am mostly feeling okay- I have bad days where I still feel terrible again. Hi Nice reply. How will it make me feel? Five years is a long time to be on medication, I hope you will be/go in remission and enjoy a medication-free life for a very long time to come. Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked. Symptoms associated with stopping thyroid medication include: Worsening of brain fog; Increased fatigue; Increased weight gain; Increased menstrual irregularity ; Increased hair loss; Worsening of constipation or GI issues; … When symptoms are controlled the dosage should be reduced to a maintenance level, which will usually be between 10 and 15 mg daily. The study was approved by the Hospital … Maybe you need a bit of lowering the dose. A white blood cell count should be performed if there is any clinical evidence of infection. will i gain weight from the medication and what will happen if i stop taking?" What is in this leaflet: 1. Thanks, Duster. Carbimazole should be stopped promptly if there is clinical or laboratory evidence of neutropenia. He just restarted the carb (which took about 6 weeks to show any effect). Something I've picked up from studying this forum is that RAI can induce eye disease, so I understand your reluctance to come off the drug very well. Yes I thought that might be the case Linanne. I am still in remission, so I hope that will give you an extra bit of hope and encouragement. Two weeks ago I was told to stop carbimazole as free t4 was 20 tsh was 3.9. The other 2 medicine which i am taking ... View answer. I read somewhere that the goiter size is an indicator for the chance of remission: the smaller the goiter, the higher the chance for remission. I am wary about the side effects of coming off the medication, which your post has helped me prepare for. Carbimazole is converted into methimazole. While we cannot always control the stress in our lives (I moved country 3 times and lost my father in the last couple of years), I do try to manage it regarding my work and other factors that I know stress me out a bit (I'm an introvert, so too much social interaction makes me unhappy). It is very important to know if your hyperthyroidism is caused by an autoimmune disease. I don't understand why RAI is pushed on to people with TED when it can worsen that condition. Hi Linaane...Im not hyper but my daughter is.....and it sounds as if you still need the carbimazole to me. Other adverse effects that have been reported include excoriations of the head and neck, lymphadenopathy, pruritus, lymphocytosis, and leucopenia (Mooney et al, 1992). Carbimazole is the most widely prescribed antithyroid medicine in the UK. You are already signed-up with us. I think your body needs to find its balance again. I was diagnosed 5 years ago with severe hyper-thyroidism, and have since been on carbimazole and levythyroxine to control it. But stopping it would mean the levels being deranged again. harm them, even if their symptoms are the same as yours. Neutropenia and agranulocytosis Manufacturer advises of the importance of recognising bone marrow suppression induced by carbimazole and the need to stop treatment promptly. All interesting posts. My endo has tried to stop the carb twice since then but both times the symptoms you describe came back. I am a little anxious about it, as 5 years is a long time to be on medication, but am ready to give it a go. Hi linanne! You may not notice much improvement in your symptoms for 1 or 2 weeks until citalopram begins to take effect. I have graves for over 4 years now and taking carbimazole long term. I have been on 5mgs of carbimazole for 2years. I have been on Block and Replace for 18months, which was awful and then when it was stopped I immediately had symptoms of Graves again. Its not a side effect of carbimazole. If this confirms a low neutrophil count, discontinuation of the drug leads to recovery. You need to be re-tested urgently. I do not know why the USA ended up using methimazole whereas the UK uses carbimazole. Sore throat, fever or mouth ulcers If the patient attends with a fever, flu like symptoms, mouth ulcers or a sore throat, this may indicate the development of neutropaenia. I was diagnosed as extremely hyper 2 years ago and put on carbimazole. MD. Lies as well: my endo insists that RAI is safe when, in fact, the risks and consequences can be very serious and at the very least, switch hyper for hypo, also notoriously badly treated. I know soy and cruciferous vegetables are on that list. Hiya I have just been diganosed with overactive thyroid and been given carbimazole just wondered if anyone else has been on this i was given it on Tues but still haven't started it yet think i scared myself half to death by looking on internet about this drug,, i have been back to gp and spoke to him about it just be nice to talk to anyone else who is on this. My doctor is away at present, for... View answer, hi. Hence, the user assumes the responsibility not to divulge any personally identifiable information in the question. He was suspected to have myositis and referred for neurological opinion. The symptoms that you will experience tend to mimic the symptoms of hypothyroidism (which probably lead you to your Doctor, to begin with) but may even be worse. I have a phone appointment on Tuesday with my Endo when Im sure she will try again to get me to have surgery. Carbimazole is a member of the class of imidazoles that is methimazole in which the nitrogen bearing a hydrogen is converted into its ethoxycarbonyl derivative. 1 The other patient developed unilateral deafness, tinnitus, and polyarthritis 10 months after starting propylthiouracil, the tinnitus persisting after complete recovery of hearing. Feel like I'm going insane What else can I do ... View answer, t4 was 27 at time of treatment starting. You've done well in getting down to such a low dose of carb. I also have met with indifference, also dogma and a degree of bullying. I have for the last couple of years been on Carbimazole and Im now down to 2.5mg every 4 days. He was started on oral prednisolone 50 mg per day and carbimazole was continued. Talk to your endocrinologist. I was on it for a year initially then it was stopped I knew nearly immediately that I would have to go back on it. I was told I needed to have RAI or surgery but I keep refusing as neither is what I want. 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